GRIPF

About The Study

Recruitment target: 20 families – family members with and without the disease

Duration: Ongoing recruitment

Study Locations

NSW

  • Royal Prince Alfred
  • John Hunter Hospital

VIC

  • The Alfred Hospital 

SA

  • Royal Adelaide Hospital 

QLD

  • The Prince Charles Hospital 

What is involved?

We are seeking suitable participants for a research study that examines how genetic factors may contribute to Idiopathic Pulmonary Fibrosis (IPF), a rare but severe lung disease. We are interested in involving families in this study as this will allow us to look at genetic similarities and differences in family members with and without disease.

This national research project is being carried out by a team of researchers from the Menzies Institute for Medical Research, University of Tasmania in collaboration with the Australian ILD Registry.

This study plans to learn more about pulmonary fibrosis and determine if genetic factors contribute to the development of diseases which result in scarring in the lung. What we learn may be helpful in the future to people diagnosed with these diseases, known as pulmonary fibrosis, and their family members.

Can I participate?

Inclusion Criteria
  • Families will have at least one member with IPF and other members impacted by pulmonary fibrosis.
Exclusion Criteria

Not applicable.

Further information or how to take part

If you would like to take part or have any questions about this research study, please fill out our Patient Trial Enquiry Form or email enquiries@pactnetwork.com.au.

This study is sponsored by philanthropic support.

Clinicaltrials.gov ID: Not Applicable

Key Trial Information

  • Trial Location: NSW , QLD , SA , VIC
  • Trial Phase: Not applicable
  • Trial Status: Recruiting
  • Trial Type: Observational
  • Trial Disease Type: Idiopathic Pulmonary Fibrosis (IPF)
  • Trial Age Group: Over 18 years , Under 18 years
  • Trial Participant Type: Patient and Carer