GRIPF

Recruitment target: 20 families – family members with and without the disease

Duration: Ongoing recruitment

What is involved?

We are seeking suitable participants for a research study that examines how genetic factors may contribute to Pulmonary Fibrosis (PF), a rare but severe lung disease. In this study, we are interested in people with PF who have a family history of PF or ILD. Additionally, if families with multiple people with PF are willing to participate, we would be interested in both the relatives with and without PF as this will allow us to look at genetic similarities and differences between the family members.

This national research project is being carried out by a team of researchers from the Menzies Institute for Medical Research, University of Tasmania in collaboration with the Australian ILD Registry.

This study plans to learn more about pulmonary fibrosis and determine if genetic factors contribute to the development of diseases which result in scarring in the lung. What we learn may be helpful in the future to people diagnosed with these diseases, known as pulmonary fibrosis, and their family members.

Can I participate?

If you would like to take part or have any questions about this research study, please fill out our Patient Trial Enquiry Form or email enquiries@pactnetwork.com.au.

This study is sponsored by philanthropic support.

Clinicaltrials.gov ID: Not Applicable