About The Study
Recruitment target: 20 families – family members with and without the disease
Duration: Ongoing recruitment
Study Locations
NSW
- Royal Prince Alfred
- John Hunter Hospital
VIC
- The Alfred Hospital
SA
- Royal Adelaide Hospital
QLD
- The Prince Charles Hospital
What is involved?
We are seeking suitable participants for a research study that examines how genetic factors may contribute to Idiopathic Pulmonary Fibrosis (IPF), a rare but severe lung disease. We are interested in involving families in this study as this will allow us to look at genetic similarities and differences in family members with and without disease.
This national research project is being carried out by a team of researchers from the Menzies Institute for Medical Research, University of Tasmania in collaboration with the Australian ILD Registry.
This study plans to learn more about pulmonary fibrosis and determine if genetic factors contribute to the development of diseases which result in scarring in the lung. What we learn may be helpful in the future to people diagnosed with these diseases, known as pulmonary fibrosis, and their family members.
Can I participate?
Inclusion Criteria
- Families will have at least one member with IPF and other members impacted by pulmonary fibrosis.
Exclusion Criteria
Not applicable.
- GRIPF Trial Summary GRIPF-PACT-Trial-Summary.pdf
Further information or how to take part
If you would like to take part or have any questions about this research study, please fill out our Patient Trial Enquiry Form or email enquiries@pactnetwork.com.au.
This study is sponsored by philanthropic support.
Clinicaltrials.gov ID: Not Applicable